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 < :Outline002_8   #`h!$#K=<6X9`(Courier NewK23  S<\  `&Times New RomanSK=<6X9`(Courier NewK..S<\  `&Times New RomanS  ;1HHP X`h!$;  < :Outline002_9   ``h!$ G2Kr`WingdingsG23  S<\  `&Times New RomanSG2Kr`WingdingsG..S<\  `&Times New RomanS;1HHP X`h!$;  &'()*+,- 35;AGMSY_11.a.i.1.a.i.1.a.9.i.($    \  `&Times New Roman<6X9`(Courier New/0134567 359=AEIMQ2PoPoPo>8(\ Y`Symbol  !USUS.,  _XX<HHE1HHP X`h!$XE @  @ #<X(X<=#<X<X(#<\#<" @ E1HHP X`h!$HHXE<<  "v  #  #<X(X,<#<&I%h<X(#&I%J<&IW#<&I%J&I#<X(XJ<&In#<&I%h<X(  i  #-  #<X(X%<&I#<X<X(#<#<#<X(X<v#<&I%X<X(#&I%%<&I#<&I%%&I#<X(X%<&I#<&I%X<X(ԀReynolds_KJ_,VernonSD,_Bouchery_ԀE,Reeves_WC_.Theeconomicimpactofchronicfatiguesyndrome.Cost p EffectivenessandResourceAllocation2:4,2004."v݌ H Ќ @  HHXHHX <%<&I   @ #<X(X<~#<X<X(#<<#< z !USUS.,  _XX<HHE1HHP X`h!$XE @  @ #<X(X<=#<X<X(#<\#<#<X(X<##X(XX<X(W#<X(XXX(<&I%X<X(#&I%%<&I#<&I%%&I#<X(X%<&I#<&I%X<X(  ii  #<X(X%<&I_#<&I%X<X(ԀJasonLA,_Richman_ԀJA,_Rademaker_ԀAW,JordanKM,_Plioplys_ԀAV,TaylorRR,_McCready_ԀW,HuangCF, $ _Plioplys_ԀS:ACommunityBasedStudyofChronicFatigueSyndromeArchIntMed1999;159(18):2129#<X(X%<&I#<&I%X<X(37.   @ #<X(X%<&Ir##X(XX<X(#<X(XXX(<X<X(#<#< B !USUS.,  _HH @  @ XXE1HHP X`h!$XE" @ E1HHP X`h!$HHXE  #X(Xo#"  #  <X(XhX(<&I%h<X(  iii  #  #<X(X%<&I##X(XX<X(#<X(XXX(<&I%X<X(ԀDr.LeonardJason,_DePaul_ԀUniversityexpertresearcherinthisarea,hasfullydemonstratedina2004study(Jof X  ChronicFatigueSyndrome,Vol.12,Issue1)thatthis2003WorkingCaseDefinition#<X(X%<&I#<&I%X<X(canidentifyaclear,definitive 0 p cohortofpatientswiththedisease.#<X(X%<&I#<&I%X<X(Also,in2003,Dr.JasondemonstratedtheineffectivenessoftheCDCcriteria:  H "VariabilityinDiagnosticCriteriaforChronicFatigueSyndromemayresultinsubstantialdifferencesinpatterns   ofsymptomsanddisability,"Evaluation&theHealthProfessions,March2003:26:1:3#<X(X%<&I#<&I%X<X(22#<X(X%<&I #<&I%X<X(Ԁfinding#<X(X%<&IO#<&I%X<X( Although   post#<X(X%<&I#<&I%X<X(_exertional_ԀmalaiseandimpairmentofmemoryandconcentrationareessentialfortheMEcriteria,theyarenot   requiredforthe_Fukuda_Ԁetal(CDC1994)criteria.#<X(X%<&I#<&I%X<X("݌ h  Ќ @  HHXHHX <%<&I   @ " @ E1HHP X`h!$HHXE<<   @ "  #<X(X<9##X(XX<X(#<X(XXX(" ݌̌ @  HHXHHX <X<X(   @  @  @  @ #< ##  <,<&I%,<4#   #<%<&I$ ##< #<<&I%< AbnormalImpedanceCardiographyPredictsSymptomSeverityinChronicFatigueSyndrome.#<%<&I #<&I%<TheAmerican ,l  JournaloftheMedicalSciences.2003;326(2):55#<%<&Il #<&I%<60. 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XHHX!   #<< ^##<#X(X<X(XXX(#<X<X(##<#<<&I%<_Myalgic_Ԁ_Encephalomyelitis_/ChronicFatigueSyndromeisadisabling_neuroimmune_Ԁdiseasethataffectsmore  AmericansthanAIDS,breastcancerandlungcancer#<%<&Io ##<P #<<&I%<combined#<%<&I ##< #<<&I%<;#<%<&I ##<u #<<&I%<morepeoplethanhavemultiplesclerosisor  cysticfibrosis#<%<&I ##< #<<&I%<;adiseasewherepatientscanbe_more_Ԁfunctionallyimpairedthanthosesufferingfromdiabetes, n  heartfailureandkidneydisease#<%<&I ##< # <<&I%<.This #<%<&I)##< #<<&I%<Ԁ#<%<&I##<# <<&I%<disease#<%<&I?##< #<<&I%<ԀwhichcoststheU.S.morethan$9.1billionannuallyinlost F  productivityhasbeensorelyneglectedbygovernmenthealthagencies.#<%<&I##<##  _#_  !&I%<&I%%&I_ A ;  i      _#<%<&Ic##<#&I%<&I%%&I " b  #<%<&I[##<z#&I%<&I%%&I#<%<&I#<&I%<Morethan900,000Americansofallage,racial,ethnic,andsocioeconomicgroupssufferforyears,decades    #<%<&IY#<&I%<andoftentheirentirelives#<%<&I#<&I%<fromthisdisease#<%<&I|##<# <<&I%<.#<%<&I##<##  _#z_  &I%<&I%%&I_ B ;  ii      _#<%<&I##<#<<&I%<ԀItsimpactsontheeconomyhavebeenmeasuredandare   significant. #<%<&I##<#<<&I%<ԀYetafternearlyfourdecadesasaninternationallyrecognizedandcategorizeddisabling   neurologicaldisorder,_Myalgic_Ԁ_Encephalomyelitis_/ChronicFatigueSyndrome(M.E./CFS)hereintheU.S. b  remainsoneofthemostunderfunded,maligned,_miscategorized_Ԁlife#<%<&I#<&I%<alteringillnessesofourtime. :z    #<%<&I#<&I%<Why? * #<%<&I(##<# >/01345678(009&'()*+,-.&I%<&I%%&I"/" K4HHtP X`h!$XK<%<&I@M<    /f2P3  @M@M<@M<<@M<    #@M@M(##@MG#<<&I%<"ChronicFatigueSyndrome"carriestheburdenofaflawedcasedefinition#<%<&I##<c##  _#0_  &I%<&I%%&I_ C ;  iii      _#<%<&I#<&I%<Ԁaswellasaninappropriate,  trivializingname,bothproducedbytheCDC.OnlyintheUSamongEnglish#<%<&Ik#<&I%<speakingcountriesisthename r CFSusedtotheexclusionofthemoreaccuratescientificname,_Myalgic_Ԁ_Encephalomyelitis_Ԁ(#<%<&I* #<&I%<theUSoversight J is#<%<&I:!#<&I%<duetomistakenepidemiologyworkbytheCDCinthe1980s#<%<&I!#<&I%<,notrecognizinganalreadyexistingdisease#<%<&I"#<&I%<)./fZ݌ "b Ќ<&I%%<&I<&I%%<&I' XHH,X'   #<%<&I"##<#K4HHtP X`h!$XK<<&I%<TheNIHhasmisappropriatedfunds,sentrequestsforresearchfundingtoadhocpanelswithfewornoexpert : members,relegatedthediseasetotheOfficeofWomen'sHealthalthough30%ofpatientsaremale,andignored  recommendationsbymedicalcommitteesandtheChronicFatigueSyndromeAdvisoryCommittee(_CFSAC_)  #<%<&I/$#<&I%<Recommendations#<%<&I &#<&I%<availablehere:http://www.cfids#<%<&I\&#<&I%<me.org/cfscc/recommend.html    #<%<&I&##<$#<<&I%<Insteadofmakinguseofahalf#<%<&I'#<&I%<centuryofresearchandclinicalinformationavailableabout_Myalgic_ Z _Encephalomyelitis_Ԁ(firstidentifiedin1934andintheWorldHealthOrganization'sInternationalClassification 2r ofDiseases[_ICD_]since1969),theCDCandNIHchosetofocusonthenon#<%<&I'#<&I%<medicalcriteria"fatigue",leading  J tothemistakenimpressionbothwithinandwithouttheagenciesthat"CFS"wasapsychosomaticorminor " illnesswhenampleevidencetothecontrarywasavailable.    #<%<&I)##<a'#<<&I%<Theresultingscientificbiasagainsttheorganicnatureoftheseriousdisease(seeExpertTestimonybelow)has  beenusedasanexcusebybothagenciestowithholdcurrentinformationfromthepublicandCongress.#<%<&I>+#<&I%<Atthe j  sametime,#<%<&Ik,#<&I%<NIHhasrefusedtoinstituteastandingcommitteeorsetappropriatelevelsoffunding.#<%<&I,#<&I%<Nearlya B ! millionAmericanshavethisdisease,bu#<%<&Im-#<&I%<tinthetwentyyearssinceCDC#<%<&I-#<&I%<renamedit,neitherthegeneralmedical !Z" communitynorthepublichaslearnedanythingaboutetiology,transmission,orappropriatetreatmentprotocols !2# eventhough#<%<&IU.#<&I%<researchers#<%<&Ie/#<&I%<havelearnedagreatdeal(withobjectivefindingsofclearphysicalabnormalities),but " $ it'snotfilteringdowntothetrenchesbecausetheNIHandCDCcontinuetofundstudiesthattrytopromulgate #% thefalsepremiseofpsychologicalproblems(Dr.Anthony_Komaroff_ԀofHarvardUniv.&Dr.LeonardJasonof z$ & _DePaul_ԀUniv.,amongmanyothers,haverefutedthatfalsepremise).#<%<&I/#<&I%<BoththeNIHandCDChavecontributedto R%!' thecontinuationof#<%<&I1#<&I%<Ԁmisinformationabout#<%<&I|2#<&I%<Ԁ#<%<&I2#<&I%<outbreaksofthedisease#<%<&I3#<&I%<bypromulgatingignorance.#<%<&Iq3#<&I%<Ԁ#<%<&I3#<&I%<Ԁ *&j"( Ѐ#<%<&I*4#<&I%<Ԁ #<%<&I4#<&I%<Example #<%<&I4#<&I%<:Recenthighly#<%<&I!5#<&I%<publicizedgeneexpression#<%<&It5#<&I%<researchbytheCDC#<%<&I5#<&I%<conspicuouslydodged#<%<&I'6#<&I%<the 'B#) majorbiologicalunderpinningsdiscovered#<%<&I~6#<&I%<bymanystudies#<%<&I7#<&I%<hereandabroadaboutth#<%<&IT7#<&I%<is#<%<&I7#<&I%<disablingdisease. 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($+ CDCDirectorDr._Gerberding_#<%<&I,9#<&I%<smisleadingstatement:#<%<&I9#<&I%<Ԁ"#<%<&I;:#<&I%<This#<%<&I:#<&I%<isthefirstcredibleevid#<%<&I:#<&I%<enceforabiologicalbasis#<%<&I";#<&I%< )%, forCFS#<%<&I;#<&I%<"ignores#<%<&I;#<&I%<Ԁ2000+priorstudiessincethemid#<%<&I(<#<&I%<1980s#<%<&I<#<&I%<demonstratingobjective,organicevidenceofviral f*&- damage,neurologicalandimmunologicalabnorma#<%<&I<#<&I%<lities,#<%<&I=#<&I%<circulatoryabnormalities#<%<&I=##<+##  _#T>triv_  &I%<&I%%&I E ;  iv      #<%<&I>#<&I%<Ԁ#<%<&In?#<&I%<andotherclearphysical >+~'. causesforthesymptoms. ,V(/   "/" N4HHtP X`h!$HH,XN<%<&I@M<  /7@2P3  @M@M<@M<<@M<    #@M@M?##@M>#<<&I%<WhileCongresshasincreased#<%<&IJB#<&I%<overallfundingtotheNIH,NIHallocationsfor#<%<&IB#<&I%<studying"CFS"have ,.)0 declinedprecipitously.#<%<&IC#<&I%<Accordingto#<%<&IC#<&I%<CDC,allocationstostudy"CFS"totallessthan$4perpatient.#<%<&IC#<&I%<Even -*1 moredisheartening,investigations#<%<&IqD#<&I%<have#<%<&ID#<&I%<foundthatsomeofthatmoneyhasbeenspentonresearchingother .*2 diseaseswith#<%<&I6E#<&I%<asymptomincommonwith#<%<&IE#<&I%<CFS,ratherthanspecificallyon"CFS."/7@"A݌  Ќ<&I%%<&I<&I%%<&I*HH,XHH,X*     "/" N4HHtP X`h!$HH,XN<%<&I@M<  /^G2P3  @M@M<@M<<@M<    #@M@M7F##@M+B#< <&I%<ԀAslongasNIHandCDCcontinuetoburywhatisknownaboutthisdisease,everyman,womanand  childinAmericaisatriskofcontractingtheillness. #<%<&ItI#<&I%<ԀThosewhodofallillsoondiscovertheU.S.agencies p donotevenhavethemostbasicclinicaltreatmentstandardsavailablefortheirdoctors.#<%<&IeJ#<&I%<ԀIfCDCdoesnotinform L thepublicwhenasevereoutbreakofdiseaseisinprocess,whatpurposedoesitserve?#<%<&ILK#<&I%<IfNIHrefusesto $d allocateapennyforresearchonamysteriousdiseasethathasleftoverhalfamillionAmericansjobless,what < purposedoesitserve?/^GIH݌  Ќ<&I%%<&I<&I%%<&I*HH,XHH,X*   #<%<&IL##<RI#K1HHP X`h!$HH,XK&I%<&I%%&I#<%<&IUN##<tN# <<&I%<WENEEDYOURHELP.#<%<&IN#<&I%<HerearetheactionsweareaskingCongresstotake:#<%<&IQO##<N#<<&I%<Ԁ     #<%<&I P##<O# &I%<&I%%&I 9&'()*+,-.(00>/01345678/ /"&"  E1  P X`h!$HHXE    &Q2  1  .3      #<%<&IP##<P#<<&I%<ByCongressionalaction,#<%<&IR#<&I%<requiretheNIHtoformastandingcommittee#<%<&I]S#<&I%<Ԁtoapproveresearchgrantsforthe 4 t  neurologicaldisease,_Myalgic_Ԁ_Encephalomyelitis_/ChronicFatigueSyndrome,ensurethattheresearchis  L  biomedicalinnatureinsteadofpsychiatric,andalsoinvestigatepastfailuretoproperlyallocateresearch  $  effortsforth#<%<&IS#<&I%<isseriousneurologicaldisease(proofoffailure:4F$JO  5  #<%<&IU##<R#%  <<&I%<http://www.co_Ԅ#<%<&IV#<&I%<cure.org/PatFero.htm%uVh  6UJUh  7Ӟ!%V#<%<&I8W#<&I%<).&Q@R݌   Ќ ! HHX  X!   "&"  E1  P X`h!$HHXE  &X2  2  .3      #<%<&IX##<V#<<&I%<InstructtheNIHtoplaceM.E./CFSunderNeurologicalDisorders&Stroke#<%<&IDZ#<&I%<Ԁ#<%<&IZ##<"Z##  #4[ort  &I%<&I%%&I H ;  v      #<%<&Ix[#<&I%<,insteadoftheOfficeof   Women#<%<&I0\#<&I%<sHealth(30%ofallpatientsaremale).#<%<&I\#<&I%<Historicalprecedent#<%<&I]#<&I%<:Congressionalactionin1950to l  placeMultipleSclerosis(formerlycalled"HystericsDisease")underthecategoryofNeurological D  DisordersattheNIHthroughtheeffortsoftheMSSociety.NotethattheNIH&CDCignoredevidence \ oftheneurologicalabnormalitiesinM.E./CFSwhentheydidtheircursoryinvestigationofoutbreaksof 4 thediseaseinNevada&Californiainthelate1980sandearly1990s.#<%<&Ir]##<[##  #_ort  &I%<&I%%&I I ;  vi      #<%<&I`#<&I%<ԀThisprovidesclearreasonsfor   actionsonthepartofCongresstocorrectseriousflawsinthehandlingof_Myalgic_  _Encephalomyelitis_/CFSoutbreaksintheUS.#<%<&I`##<!`#%  V&I%<&I%%&I&XY݌ | Ќ ! HHX  X!   "&"  E1  P X`h!$HHXE  &Tc2  3  .3      #<%<&I|b##<b#%'bort  <<&I%<RequiretheCDCandNIHtoformallyadoptthe#<%<&Id#<&I%<2003#<%<&Ike#<&I%<Ԁ_Myalgic_Ԁ_Encephalomyelitis_/ChronicFatigue T SyndromeClinicalWorkingCaseDefinitionDiagnosticandTreatmentProtocols;AConsensus ,l Document#<%<&Ie#<&I%<Ԁ(availableat:lb#<%<&If#<&I%<Ԁ3g4KӒ JO  5  g#<%<&Ifg##<d#%   h<<&I%<http://www.mefmaction.net/documents/me_overview.pdfh%`hort  6gJgort  7g#<%<&Ih#<&I%<Ԁ)toreplacethepresent D inadequateandinaccurate1994_Fukuda_Ԁcriteria(provenbyDr.LeonardJasoninthestudycitedin  reference#3).#<%<&Ii#<&I%<Atthesametime,#<%<&Ik#<&I%<implementtheinternationallyacceptedname_Myalgic_  _Encephalomyelitis_/CFS#<%<&Ijk#<&I%<Ԁtoaccuratelydescribewhatiscurrentlyknownaboutthedisease.&Tcd݌  Ќ ! HHX  X!   "&"  E1  P X`h!$HHXE  &Gm2  4  .3      #<%<&ILl##<h#<Ci<&I%<RequireSecretaryLeavitttoincorporatethe11recommendationsmadebyhisChronicFatigueSyndrome d AdvisoryCommittee(_CFSAC_)inNovember2004,recommendationswhich#<%<&In#<&I%<servetoimplementthe <| neurologicalclassificationandfundingofresearch.nԁ#<%<&Io#<&I%<_CFSAC_Ԁis#<%<&Ip#<&I%<the_DHHS_Ԅ#<%<&I1q#<&I%<appointedcommittee#<%<&Iq#<&I%<comprised T ofmanyofthe#<%<&Iq#<&I%<topME/CFSveteranresearchersandcliniciansintheU.S.p#<%<&Iar#<&I%<Ԁ(NOTE:SecretaryLeavitthas , beenurgedinwritingbyseveralmembersofCongresstoimplementtheserecommendations,yetnothing   hasbeendone.)r&Gmm݌ ! Ќ ! HHX  X!   "&"  E1  P X`h!$HHXE  &t2  5  .3      #<%<&Is##<n#<<&I%<InstructtheCDCtoupdatetheinformationitdisseminatestoreflecttheWorldHealthOrganization t " classification(_Myalgic_Ԁ_Encephalomyelitis_/CFSinthe_ICD_Ԅ#<%<&I v#<&I%<10undertheneurologicalclassification L!# G93.3)andtheabovementionedCongressionalorders#<%<&I`w#<&I%<.&tKu݌ $"d$ Ќ ! HHX  X!   #<%<&Ix##<u# E1P X`h!$HHXE<<&I%<Ԁ "<% Ѐ#<%<&Iy##<hy# H1HHP X`h!$XH<<&I%<Ԁ#<%<&I){##< {# <<&I%<WhyweaskOurPublicServantstoTakeActionatthistime #<%<&I{##<{#&I%<&I%%&I $ ' #<%<&IS|#<&I%<Fortwodecades,CDCandNIHhaverefusedtorespondtonumerousrequestsbyM#<%<&I|##<r|#<<&I%<.#<%<&I}##<|}#<<&I%<E#<%<&I ~##<~#<<&I%<.#<%<&I~##<~#<<&I%</CFSpatients, %!( _caregivers_,researchersandclinicians,eventhoughmostoftherequestswouldinvolvelittleorno `&") funding.#<%<&I*#<&I%<Ignoredbytheveryagenciesthatarechargedwithaddressingpublichealthissuessuchasthis,we 8'x#* remaindisabled,misunderstood,bereftofsensibletreatmentand,unabletoreturntoeconomicproductivity,a (P$+ burdenonourfamiliesandsocietyasawhole.#<%<&I0#<&I%<ԀAllAmericanswouldbenefitbythesimplere#<%<&I#<&I%<categorizationof ((%, thisdiseasetotheWHO_ICD_Ԅ#<%<&I #<&I%<10categorywhereitbelongs,underneurology,togetherwiththeinternational )&- terms_Myalgic_Ԁ_Encephalomyelitis_ԀandPost#<%<&Iం#<&I%<ViralDiseaseSyndrome.#<%<&Iྃ#<&I%<ԀIftheNIHandCDCrefusetofundnew *&. researchintothisdisease,atleastwecouldbenefitfromwhatisalreadyknownoutsidetheUnitedStates. p+'/   #<%<&I#<&I%<Morein#<%<&I##<&I%<depthinformationisavailableatyourrequestaswellasreferencessupportingtheneedforimmediate  -`)1 actionontheaboverecommendationsat#<%<&Im#<&I%<#&I%%<&I #<&I%%&IsԀ_CFSfacts.org_._ԀThankyouforyourconsiderationandsupport. -8*2   #<%<&IP#<X(X<#X(XX<X(#<X(XXX( .+3 SS S SR  S7w$#<X<X(#<X(X<ExpertTestimony 7w   S v #<X<X(##<ȇ#<<&I%<Example#1#<%<&IU##<6#<<&I%<:AccordingtoAnthony_Komaroff_,ProfessorofMedicineatHarvardandarenownedworldexpert   onM.E./CFS,therearenowmorethan2,000paperswhichdemonstrateunequivocallythatM.E./CFSisan   organic,andnotapsychiatric,disorder. y  S 7 ԁ#<%<&I##<lj#<<&I%<Example#2#<%<&I΋##<#<<&I%<:In1999,Dr.LeonardJasonfrom_DePaul_ԀUniversity,Chicago,wasoutspoken,writingthatitis  7 regrettablethatthedisorderisportrayedinsuchanarrowway,andthatflawsinthecasedefinitionsof'CFS'    haveledto#<%<&I_#<&I%< inaccurateandbiasedcharacterizationofME/CFSwhichincorrectlyfavorsapsychiatricviewof   theillness#<%<&Iƍ#<&I%<.#<%<&I#<&I%<Hecorrectly#<%<&Iӎ#<&I%<pointedout#<%<&I"#<&I%< theerroneousinclusionofpeoplewithprimarypsychiatricconditionsin   ME/CFSsampleswillhavedetrimentalconsequencesfortheinterpretationoftreatmentefficacyfindings#<%<&Ip#<&I%<.#<%<&Iz##<@#&I%<&I%%&I W  S  #<%<&I##<#<<&I%<AsProfessorJasonstatedinhisletterofMay12th,#<%<&Iฑ#<&I%<2005,totheEditorofPsychologyToday,ME/CFSisa   #<%<&I/#<&I%< devastatingchronicdisorder,"andhequestionedwhyitisassumedthatitisonlysufferersthemselveswho   believeittobeanorganicdisorderwhenmanyscientists,includinghimself,supportsuchaview.He   further#<%<&Iຒ#<&I%<statedthattherehasbeenamass#<%<&I#<&I%<ignoringof#<%<&Ig#<&I%< alargebodyofmedicalresearchdemonstratingbiological ] abnormalitiesinindividualswithME/CFS.Foryears,investigatorshavenotednumerousbiomedical 5u abnormalitiesamongME/CFSpatients,includingover#<%<&Iൔ#<&I%<activatedimmunesystems,biochemical_dysregulation_Ԁin  M the2#<%<&I#<&I%<5A_synthetase_Ԁ/_RNASE_ԀLpathway,muscleabnormalities,cardiacdysfunction,abnormalEEGprofiles, % abnormalitiesincerebralwhitematter,decreasesinbloodflowthroughoutthebrain,andautonomicnervous  systemdysfunction."  SS#<%<&I৖##<#ņ<<&I%<Instead,toomanydoctorsstilldemonstratearepeatedfailuretodistinguishbetweenthe#<%<&IĘ##<#<<&I%<symptom#<%<&Iə##<#<<&I%<Ԁof"chronic S fatigue"resultingfromoverworkorasasymptomofothermedicalconditionsandtheentirely#<%<&I{#<&I%<differentL#<%<&I<##<\#<<&I%<disease›#<%<&I##<қ#<<&I%< + ofME/CFSt#<%<&Iࣜ##<#<<&I%<Ԁ(eventhoughthedifferenceshavebeenrepeatedlybroughttotheirattentionandeventhoughas  longagoas1990,theAm_erican_ԀMedicalAssociationissuedaspecificnoticeemphasizingthat'chronicfatigue'  isasymptomthatpresentswithmanyillnesses,andnotatallthesameaschronicfatiguesyndrome(CFS).This s hasresultedinsuppressionof#<%<&Ii#<&I%<biomedicalevidenceofME/CFS.Focusingonthesinglesymptomof'fatigue'or K 'chronicfatigue'inME/CFSandignoring#<%<&If#<&I%<theothersignificantsymptomsandsigns,especiallycardiovascular, #c neurologicalandimmunological,keepsthefocusoffthefarmoredebilitatingsymptomsthat#<%<&I4#<&I%<thesepatients ; sufferfrom(i.e.,_Orthostatic_ԀIntolerance(OI),#<%<&I+#<&I%<cognitive/memorydysfunction,andcardiacinsufficiency,etc.)  SQ! >ԁ#<%<&I##<J#<<&I%<Example#3#<%<&IѢ##<#<<&I%<:M.E./CFSexpert,Dr.DanielPetersonfromInclineVillage,Nevada,hasgoneon#<%<&Ib#<&I%<records#<%<&I##<C#<<&I%<aying Q! thatin1989#<%<&I##<b#<<&I%<ԀhebelievedthatM.E./CFSwouldberesolvedbyscience;hehassincechangedhismindand )"i believesthatitcanonlyberesolvedbypolitics. #A S$ ,$l #<%<&I+##< #<<&I%<Example#4#<%<&I~##<_#<<&I%<:#<%<&I##<#<<&I%<KatrinaBerne,_Ph.D_Ԁinherbookonthediseasereported#<%<&I##<v#<<&I%<"...TheapparentlydisinterestedCDC $  essentiallyturneditsbackonthedevastationinInclineVillageandelsewhere. W%!! #<%<&Ip#<&I%<ԀHillaryJ.Johnson,authorof_Osler_'sWeb,commentedthatthename"ChronicFatigueSyndrome"wa#<%<&IQ##<Q#<<&I%<sselected /&o"" byasmallgroupof#<%<&IV##<7#<<&I%<politicallymotivatedand/orpoorlyinformedscientistsanddoctorswhowerevastlymore 'G## concernedaboutcoststoinsurancecompaniesandtheSocialSecurityAdministrationthanaboutpublic '$$ health.#<%<&I #<&I%<Theirdeliberateintention#<%<&I>#<&I%<!basedonthecorrespondencetheyexcha#<%<&I##<#<<&I%<ngedoveraperiodofmonths#<%<&IJ#<&I%<!#<%<&I੭##<+#<<&I%<was ($% to#<%<&I2#<&I%<obfuscatethenatureofthediseasebyplacingitintherealmofthe#<%<&I#<&I%<psychiatricratherthantheorganic.#<%<&I#<&I%<ԀThe )%& h#<%<&I~##<#<<&I%<armtheyhavecausedissurely#<%<&I##<#<<&I%<oneofthegre#<%<&I࿰##<#<<&I%<attragediesofmedicine." g*&'  S#<%<&IQ##<2#<<&I%<Example#5#<%<&I##<#<<&I%<:#<%<&I௲##<#D_VԀ#D_V#<<&I%<"Ihavetreatedmorethan2,000#<%<&Iy#<&I%<AIDSandCFSpatientsinmycareer.And#<%<&I۳#<&I%<theCFSpatientsare +'( MOREsickandMOREdisabledeverysingledaythanmyAIDSpatientsare,exceptforthelasttwomonthsof j,() life!"Dr.MarcLovelesswhotestifiedunderoath#<%<&IE#<&I%<beforeCongressin#<%<&I`##<Z#<<&I%<1995. B-)*    .2+, NsQ N N    #<%<&I#<&I%<Ԁ#<%<&Iն#<X(X<#X(XX<X(ص#<X(XXX(    #<X<X(##<Z#