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Pediatric CFS

Non-Profit, Medical, and Educational
Commercially Funded Sites
On-line Publications
Other sites

[Note: Non-Profit, Medical, and Educational sites, Commercially Funded Sites, On-line Publications, and Other Sites appear on this page. All other categories are on page 1.]

Links to Other Web Sites and Resources Page Number:     1    2


E-Mail Lists, Newsgroups, and Other Resources
E-Mail Lists and Newsgroups Online Bulletin Boards and Chat Rooms

Search Tools are available on every Additional Resources page.


This page is provided as a resource listing of primary internet sites for CFS, FM, MCS, GWS, and auto-immune conditions. If you would like to see an online resource listed here, please contact us by completing our on-line form or sending an email message to Co-Cure-Mod@listserv.nodak.edu.

Non-Profit Groups, Medical and Educational Institutions

Action for ME

American Pain Foundation

American Pain Society.

Arthritis Foundation

Arthritis Society, Nova Scotia, Canada.

AYME The Association for Youth with ME. AYME (pronounced 'aim') is an independent registered charity dedicated to giving help, support and vital contact to children and young people with Myalgic Encephalomyelitis (ME).

The Canadian Infectious Disease Society.

CAA The CFIDS Association of America, Inc.

CFIDS Emergency Relief Services, Inc. Helps primarily people with CFIDS, who having no other recourse, would endure hunger, homelessness and/or medical deprivation.

CFIDS/Fibromyalgia Self-Help: Offers low-cost self-help courses over the Internet and other resources for people with CFIDS, fibromyalgia and related illnesses.

CFIDS Youth Alliance.

Chicago CFS Association

Chronic Fatigue and Chronic Fatigue Syndrome A Practical Self-Help Guide - The Chronic Fatigue Syndrome Research and Treatment Unit, New Medical School, Kings College Hospital, London SE5 7PJ.

Compassion in Action An organization providing education and support to persons with FM and CFS in Canada.

CPIN Chronic Pain Information Network. Mission statement: To relieve pain and suffering.

CPRUIS. Collaborative Pain Research Unit Information Services.

CSSA The Chronic Syndrome Support Association is a non-profit organization founded in order to educate the general population and health-care professionals on the serious, yet invisable, conditions Fibromyalgia, Chronic Fatigue Syndrome, Gulf War Syndrome, and Multiple Chemical Sensitivity Syndrome.

Directory of Scholarly and Professional E-Conferences; The 11th Rev..

Family Friendly Fun with Special Needs offers access to mind, body and spirit-enriching information that enhances the quality and enjoyment of family life with special needs.

The Feldenkrais Movement Institute. This Web site includes the most comprehensive compilation of articles and research on the Feldenkrais Method®, a complete FAQ page as well as a list of current workshops and seminars. This method has some specific applications to fibromyalgia and back pain, among other things.

The Fibromyalgia Network Maintains lists of on-ground support groups, and can be a significant resource for both fibromyalgia and CFS patients.

Fibromyalgia Self-Help Group of Tuscaloosa Seeks to help fibromyalgia patients by helping them to educate themselves about this disease.

Infectious Diseases Society of America.

The Institute for Molecular Medicine is a nonprofit private research institute dedicated to discovering new diagnostic and therapeutic solutions for chronic human diseases. Reports, reprints, and information on Gulf War Illness, Cancer and Chronic Diseases can be examined and in many cases down loaded.

InteliHealth This is a joint effort between Harvard Medical School and Aetna/US Healthcare.

The International Association for Chronic Fatigue Syndrome

International Association for the Study of Pain.

Johns Hopkins Medicine--Home Page.

Leeds and District M.E. Group (UK) website includes information about the group, dates of meetings, a list of useful phone numbers, links to some other ME/CFS related sites, and a print-out and send application form.

Lincolnshire Post-Polio Network in eastern England

Lupus Foundation of America., Inc.

Lupus Home Page of Hamline University, St Paul, MN provides an extensive amount of information and links pertaining to Lupus.

MERGE - MERGE is a national UK charity funding biomedical research into Myalgic Encephalomyelitis (also known as ME/CFS) and related illnesses.

M.E. Society of America is an organization concerned with research and advocacy issues.

MAME, Inc. Mothers Against Myalgic Encephalomyelitis is an organization dedicated to promoting education and awareness about myalgic encephalomyelitis by utilizing well family and community member volunteers.

Massachusetts CFIDS Association

MCS Referral & Resources. Information on MCS, including resource list, referral request form, all our press releases, and summaries of our data on MCS Recognition, MCS Prevalence, MCS Conferences, and MCS Research (from our MCS Bibliography).

ME-CFS Society of Victoria Inc.

ME Association Homepage. The ME Association, a registered charity, supports all those affected by Myalgic Encephalomyelitis (ME) by providing specialist information and advice services, literature and self-help groups. It also promotes research into the causes and effects of the illness; increases public awareness of ME; provides training for health & other professionals; raises funds for research; and campaigns for appropriate high-quality services for sufferers.

M/PWC - Medical Professionals/Persons with CFIDS/M.E.

NACPAC. North American Chronic Pain Association of Canada, a non-profit registered Canadian charity that is a national assocation of self-help groups for Canadians in chronic pain. NACPAC is an affliate of ACPA, the American Chronic Pain Association.

National Adrenal Diseases Foundation.

The National CFIDS Foundation, Inc. (USA)

The National Fibromyalgia Partnership, Inc. (NFP), publishers of the Fibromyalgia Frontier, provides resource materials to medical professionals, distributes medically accurate information to patients, and promotes public awareness and understanding of fibromyalgia.

National ME/FM Action Network is a Canadian, registered non-profit organization dedicated to advancing the recognition and understanding of ME/CFS and FMS through education, advocacy, support and research. They spearheaded the drive for clinical definitions for ME/CFS and FMS, which can be viewed on their website. They also have a "Youth Site," newsletter, etc.

National Organization for Rare Disorders, Inc..

National Organization of Physicians Who Care. Physicians Who Care, Inc. is a nonprofit organization which espouses the private practice of medicine. Also visit the Patients Who Care site.

NJCFSA New Jersey Chronic Fatigue Syndrome Association. (USA)

The Nightingale Foundation. Dedicated to the study and treatment of MyalgicEncephalomyelitis / Chronic Fatigue Syndrome (also known as M.E. / CFS , CFIDS and Fibromyalgia, Post-Viral, Toxic, Post-hepatitis B immunization and Post-Traumatic Brain Syndromes)

The Northwest Center for Neurosomatic Disorders Specializing in the treatment of Chronic Fatigue Syndrome (CFS), Fibromyalgia (FMS) and Other Neurosomatic Disorders (NSDs).

Our Chronic Pain Mission (O.C.P.M.)   Offers solace, support and understanding to the chronic pain sufferer.

Overton Studios Trust provides world-wide Therapeutic Support and Media Production for people with Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and Fibromyalgia.

QuackWatch Home Page. Operated by Stephen Barrett, M.D.

The Road Back. For patients (and their doctors) with Rheumatoid Arthritis, Scleroderma, Lupus, Polymyositis, Reiter's Syndrome, Psoriatic Arthritis, Ankylosing Spondylitis, Fibromyalgia or Juvenile Rheumatoid Arthritis interested in using antibiotics as a treatment protocol.

RxAssist. RxAssist provides health care providers with information on accessing more than 100 pharmaceutical manufacturers' patient assistance programs. These programs usually offer a limited supply of free prescription medication to eligible patients.

SAYME. The South Australian Youth with ME / Chronic Fatigue Syndrome (CFS) aims to raise awareness around the world about ME / CFS and provide fun, friendship and support for young people who suffer from this terrible illness.

Society for Neuroscience (SFN), the world's largest organization of scientists dedicated to basic research of the brain, nervous system, and spinal cord.

Talarian Index. Comprehensive resource on all aspects of pain.

UCDHS Center for Medical Informatics, contains the ICD-9-CM, 6th Edition (Published Oct/97 for FY98).

University of Iowa Health Care Chronic Fatigue Studies.

VEDA Vestibular Disorders Association Website.

Vitamins and Nutrition Center

Index Top of Page

Commercially Funded Sites

Alzheimer's Disease Resource. "AlzheimerSupport.com serves Alzheimer's Disease sufferers and those close to them by focusing on three primary objectives: 1) reporting the latest news in Alzheimer's Disease treatment and research; 2) making top quality nutritional supplements available at manufacturer direct low prices, and, most importantly, 3) donating profits from each purchase to Alzheimer's Disease research." Free email bulletins providing updates on the diffent diseases, and chat rooms are available.

Arthritis Resource. "ArthritisSupport.com serves arthritis sufferers and those close to them by focusing on three primary objectives: 1) reporting the latest news in Arthritis treatment and research; 2) making top quality nutritional supplements available at manufacturer direct low prices, and, most importantly, 3) donating profits from each purchase to Arthritis research." Free email bulletins providing updates on the diffent diseases, and chat rooms are available.

Ask the Doctors! Your medical questions answered by physicians via e-mail.

CareAndHealth.Com. A UK site for everyone involved in social work, care, and the health professions.

CenterWatch Clinical Trials Listing Service, an international listing of clinical research trials. You can use this listing to search for clinical trials, find out information about physicians and medical centers performing clinical research, and to learn about drug therapies newly approved by the Food and Drug Administration. You may also sign up for our E-mail notification service, which will inform you of future postings in a particular therapeutic area.

Chronic Fatigue Syndrome & Fibromyalgia Resource. "Immunesupport.com provides reputable, quality information to people who suffer from Chronic Fatigue Syndrome, Myalgic Encephalomyelitis, and Fibromyalgia. As the CFIDS & FM Health Resource, we are the largest private contributor to fund research and have donated over $2.2 million to find a cure for these diseases." Free email bulletins providing updates on the diffent diseases, and chat rooms are available.

David Posen, MD - Stress Management, Work-Life Balance and Change Management.

Doctor's Guide to the Internet - Doctor's Guide HomePage, Professional Edition and Patient Edition.

Getting the Best from Your Doctor This site concerns itself with the problems of obtaining the best health care possible in today's medical care environment, with its emphasis on managed health care.

A glandular fever help site
A service offering help to current and post sufferers of glandular fever.

Glandular Fever - Nutritional Help for glandular fever.
(Alternative medicine treatment to help patients with glandular fever.)

HealthlinkUSA Free links to 1,000's of health sites, 100's of healh topics, featuring treatment, diagnosis, prevention, risk factors, support groups, email lists, personal stories, etc. Updated regularly. (Includes sections on CFS and fibromyalgia.)

Health-Wise Articles by Dr. Ray Forbes.

Lupus Answers - The Complete Guide to Understanding Lupus and How You Can Learn to Live With It.

MedicineNet (TM) Home Page -- A free Medical Reference. Medical resource written in plain language by board-certified physicians. MedicineNet the most comprehensive health reference on the net, covering diseases and treatments, drugs and side-effects, medical terms, weekly news. MedicineNet offers viewer interactivity through chat and messaging, as well as an Ask the Experts section where viewers may submit their own questions.

Merck & Co., Inc., Whitehouse Station, NJ.

Prevention Magazine's Healthy Ideas Website on Chronic Fatigue Syndrome.

Sympatico HealthyWay

The Doctor Will See You Now

RxList - The Internet Drug Index

Thrive@Health CFIDS Section

TMJ & Facial Pain Center

WebMD WebMD is a web site dedicated to providing consumers with up-to-date health information.

Your Chronic Fatigue Syndrome Resource. This site is designed to help you cope with Chronic Fatigue Syndrome by reporting the latest research news, offering a chat room, message boards, event announcements, and much more.

Index Top of Page

On-line Journals and Publications

The American Journal of Preventive Medicine publishes original articles, reviews and correspondence on all aspects of practice, education, policy and research in preventive medicine and public health.

Annals of Internal Medicine is published twice monthly and copyrighted © 1997 by the American College of Physicians.

British Medical Journal.

Canadian Medical Association Journal.

European Journal of Public Health

Family Practice On-Line, a peer reviewed medical journal.

Haworth Medical Press, publishers of the Journal of Musculoskeletal Pain, Journal of Nutritional Immunology, Journal of Chronic Fatigue Syndrome, Journal of Neuro-AIDS, and Women & Health.

Information Retrieval Unit Electronic Journals and more.

Journal of the American Medical Association (JAMA).

Journal of Health Politics, Policy and Law.

Journal of Immunology.

Journal of Neuroscience.

The Lancet.

Medicine On-Line, the international medical journal.

New England Journal of Medicine.

Scientific American.

Index Top of Page

Other sites

Acute hemolytic anemia caused by 2-Butoxyethanol

Alternative Medicine. Easy Alternative Medicine.

Allergy UK - The Leading UK medical charity for people with allergy & chemical sensitivity.

Definition Of Anorexia

IBS Tales - Read the personal stories of IBS sufferers and share your own experiences.

Irritable Bowel Syndrome. Information from DigentionInfo.com.

Irritable Bowel Syndrome Treatment. Information on the range of treatments available for IBS, from drugs to alternative therapies.

Lupus JIE - Your online resource for Lupus!

Lyme Disease Network Home Page.

Menopause and Black Cohosh Information Center. Learn about Menopause and Osteoporosis, and find out exactly what Red Clover Leaf, Black Cohosh, and Soy Isoflavones do for you, and what natural ingredients don’t do anything. Also, you’ll learn about one of the biggest things to hit women after Menopause – osteoporosis. Learn as much as you can now!

Mild Traumatic Brain Injury Identification Checklist, Copyright 1992, Centre for Neuro Skills.

The Melungeon Health Education and Support Network. Information on Familial Mediterranean Fever, one of whose symptoms is fibromyalgia.

NeuroLinks.

Orthostatic Hypotension

Pneumotox Online. The Drug-Induced Lung Diseases.

Restless Leg Syndrome

Skin Care Resource Center. The Skin Care Resource Center contains over forty articles on skin care, and facial skin care, interviews with dematologists, information on natural skin care products as well as reviews of facial skin care products.

Social Security (U.S.) Resource site for everything to do with social security. Full of newsletters, articles, links and other resources - ALL FREE - in one easy to navigate site to save time and money.

Tendonitis.net - Your Source for Tendinitis Information and Treatment Options. Offers information and treatment options about tendonitis, tendonitis treatment, tendonitis symptoms,tendonitis relief, tendinitis pain and more.

The Thyroid LISTSERV Home Page.

Traumatic Brain Injury. More than a half million Americans are hospitalized each year from head injuries. Approximately 20 percent suffer lifelong mental and/or physical impairment. This section provides information about head injury.

Index Top of Page

Return to Other Web Sites and Resources Page Number 1


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