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E-Mail Lists and Newsgroups

Fibromyalgia

• CFIDS & FM Research and Treatment News bulletin from ImmuneSupport.com.

• FIBROM-L (Discussion group concerning Fibromyalgia.)
  To subscribe, send the message:
  

     SUB FIBROM-L FirstName LastName
  
  

  To: LISTSERV@COMMUNITY.LSOFT.COM

• Yahoo! Fibromyalgia Groups

Multiple Chemical Sensitivity

• Chemical-Illnet

Immune Disorders

• IMMUNE (Discussion Group for people with an interest in immune-system disorders such as chronic fatigue syndrome, lupus, candida, fibromyalgia, asthma, multiple allergies, chemical sensitivity. Listowner: Cyndi Norman.)

  Put the following in the body of the message:
  

    subscribe immune your_email_address
  
  

  or for the digest list:

    subscribe immune-digest your_email_address
  
  

  To: majordomo@balaca.com

Gulf War Syndrome

• GWVM (Mailing list)
  Leave the subject line blank and enter in the message area of an email message:

    subscribe gwvm your@email.address
  
  

  To: MAJORDOMO@STRUCTURED.NET

Chronic Fatigue Syndrome

• CDN-ME-FM (A discussion list with the goal of exchanging Canadian information and support (personal, financial, legal, etc.) for those with ME and FM, in the hope of finding a cure for these illnesses and solving the isolated situation that most sufferers find themselves in. Contact Moderators at CDN-ME-FM-Request@listserv.nodak.edu)
  To subscribe, send the message:
  

    SUBSCRIBE CDN-ME-FM YourFirstName YourLastName
  
  

  To: LISTSERV@LISTSERV.NODAK.EDU

• CFIDS & FM Research and Treatment News bulletin from ImmuneSupport.com.

• CFS-Ampligen (Open e-mail discussion group for those interested in Ampligen for the treatment of CFS. This list is owned by Ken Lassesen, who can be reached at CFS-Ampligen-owner@onelist.com.)
  To subscribe, send a blank e-mail to: CFS-Ampligen-subscribe@onelist.com

• CFS-Care (A free internet e-mail discussion group has formed for caregivers of people with Chronic Fatigue Syndrome and other chronic illnesses.)
  To receive further information about this discussion group, or to join, e-mail your request to cfscare@mindspring.com.

• CFS-L (Patients' discussion of health and other issues. Also available as Usenet as newsgroup alt.med.cfs)
  To subscribe, send the message:
  

    SUB CFS-L YourFirstName YourLastName
  
  

  To: listserv@listserv.icors.org

• CFS-W is an e-mail forum where writers with CFIDS/ME, FMS and other related illnesses can talk about writing, share their own writing, and exchange ideas on coping with the symptoms of CFIDS (brainfog, fatigue) that can make writing difficult. CFS-W is a friendly environment for writers to seek help, support and encouragement from others. To subscribe to CFS-W, send the message:
  

  subscribe cfs-w
  
  

  To majordomo@tertius.net.au

  Or you can subscribe on-line by visiting http://www.tertius.net.au/mailman/listinfo

• CFS-Y (CFS discussion for youths.)
  To subscribe, send the message:
  

    SUB CFS-Y YourFirstName YourLastName
  
  

  To: listserv@listserv.icors.org
  

• Co-Cure (CFS and FM non-discussion email listservice open to individuals and groups who are interested, either professionally or personally, in information pertaining to CFS and FM. Also welcome as members those individuals interested in or affected by Multiple Chemical Sensitivity, Gulf War Syndrome, and auto-immune conditions. However information suitable for posting is limited to that which is directly relevant to CFS and FM. Contact Moderators at co-cure-mod@listserv.nodak.edu)
  To subscribe, send the message:
  

    SUBSCRIBE CO-CURE YourFirstName YourLastName
  
  

  To: LISTSERV@LISTSERV.NODAK.EDU

• Gay Chronic Fatigue Syndrome Support Group
  A message from this group's founder:
  "Chronic Fatigue Syndrome is a difficult and challenging illness that affects every aspect of our lives. Gay people with CFS also face additional challenges added onto what others with this illness have to deal with. Finding support and other people with this illness to feel connected to can be difficult. I am hoping gay people and others in their lives will find it safe in this moderated private online support group to discuss anything they like. You don't just have to talk about the illness itself all the time. I know the group may start out small, but I am hoping as time goes on it will grow. Regardless of the number of people in the group, I am hoping that by joining members will find support, information and companionship with others who share their illness and face it's challenges on a daily basis."
  [Note: Clicking on the link above will get you to this group's Web page at Yahoo! Groups. You can also write to the list owner at Gay_Chronic_Fatigue_Syndrome_Group-owner@yahoogroups.com.]

• Kutapressin.
  A discussion group for people who want answers to the questions about Kutapressin, including manufacturing problems, distribution problems, and when the drug will be made and offered again, as well as alternatives to Kutapressin.

• MECHAT-L (Discussion and chat group for ME patients and carers both in and from the U.K..)
  To subscribe, send the message:
  

  SUBSCRIBE MECHAT-L Firstname Lastname

  to LISTSERV@LISTSERV.AOL.COM

• ME-NET (Dutch CFS/ME/Lyme discussion list.)
  To subscribe, send the message:
  

    SUB ME-NET YourFirstName YourLastName
  
  

  To: LISTSERV@NIC.SURFNET.NL

• Myalgie-L (German CFS/FM/pain/etc list.)
  "Myalgie" - die Mailingliste fuer myalgische Krankheiten Kurzbeschreibung deutschsprachiges Diskussionsforum fuer myalgische Krankheiten im Internet

  Charta "Myalgie" soll der Diskussion, Information, Hilfestellung und dem Erfahrungsaustausch ueber Themen dienen, die mit myalgischen Krankheiten und entsprechenden Behandlungsverfahren zu tun haben. Hierbei handelt es sich u.a. um

  Chronisches Erschoepsfungs Syndrom (CFS),
  Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS)
  Eosinophilie-Myalgie-Syndrom (EMS),
  Fibromyalgie (FMS),
  Multiple Chemical Sensitivity (MCS)
  Myalgische Encephalomyelitis (ME),
  Postviral Fatigue Syndrom (PVFS)
  und so weiter...

  Folgende Themen sind u.a. denkbar:

  - Falldiskussionen (auch ohne Namensangaben)
  - Fragen & Erfahrungen zu Behandlungstechniken
  - Erfahrungen mit Arbeitgebern, Krankenkassen etc.
  - Hinweise auf interessante Beitraege aus Zeitungen und Zeitschriften - Veranstaltungshinweise (Kongresse, Weiterbildungen, etc.) - Austausch mit auf diesem Gebiet fachlich kompetenten Aerzten, Kliniken, usw.

  und vieles andere mehr....
  Status
  "Myalgie" ist unmoderiert, und eine Projekt von Fatigatio e.V.
  Spenden sind immer willkommen:
  Stichwort: Mailingliste
  Bank : Commerzbank Bonn
  BLZ : 380 400 07
  Konto-Nr.: 222 222 2

  Zugelassener Personenkreis
  - Betroffene
  - Angehoerige
  - Aerzte
  - Psychologen
  - Psychotherapeuten
  - Heilpraktiker

  und alle, die sonst mit myalgischen Krankheiten zu tun haben

  Da diese Liste bewusst weitgehend offen ist und praktisch alle zugelassen sind, ist jeder Teilnehmer aufgefordert, sich auf das Hauptthema "myalgische Krankheiten" zu beschraenken. Darueberhinausgehende Themen sind in dieser Liste unerwuenscht. Vertrauen ist eine unverzichtbare Grundvoraussetzung fuer das Funktionieren dieser Liste. Jeder, der ihr beitritt, verpflichtet sich uneingeschraenkt, keinerlei persoenliche Daten der Teilnehmer an andere weiterzugeben.

  Info & Anmeldung
  Schreiben Sie an:
  Majordomo@psychotherapie.org

  ANMELDUNG:
  subscribe Myalgie-L Deine@Mail.adresse

  ABMELDUNG:
  unsubscribe Myalgie-L Deine@Mail.adresse

• OzME (Mailing list for people with CFS/CFIDS/ME, FMS, MPS, or related illnesses. People who have some interest in these diseases, such as parents, children, spouses and carers, are also very welcome. Focus is on Australia and New Zealand. Complete information about this list, as well as subscribing instructions, can be found at www.masmith.inspired.net.au/aus_info/ozme.htm

• Yahoo! ME/CFS Groups

Other

• ADS-L (A list for discussing topics related to the attention deficit syndrome. To subscribe, send the message
  

    sub ads-l firstname lastname
  
  

  To: LISTSERV@VM.EGE.EDU.TR

• ALT-PRACT-L (Alternative & Complementary Health Practices; digest. APHA) To subscribe, send the message
  

    subscribe alt-pract-l digest
  
  

  To: alt-pract-l@liststar.apha.org

• Alzheimer's Disease Research and Treatment News bulletin from AlzheimerSupport.com.

• Arthritis Research and Treatment News bulletin from ArthritisSupport.com.

• Chronic-L (Chronic Disease Issues; digest. APHA) To subscribe, send the message
  

    subscribe chronic-l digest
  
  

  To: chronic-l@liststar.apha.org

• CMV-L (Cytomegalovirus. The purpose of the CMV-L list is to create a common ground - for parents and caregivers of children with congenital CMV, their caretakers, therapists, doctors and nurses who work with our children, those with CMV, and those researching ways to conquer CMV. Owner: Sue Robertson peacock351@aol.com)
  To subscribe to the CMV-L, send the message:
  

    SUBSCRIBE CMV-L yourfirsttname yourlastname
  
  

  To: MAJORDOMO@AVENZA.COM

• Disability-L (Disability Forum; digest. APHA) To subscribe, send the message
  

    subscribe disability-l digest
  
  

  To: disability-l@liststar.apha.org

• DiseaseMgt (The Disease Management Forum is an Internet discussion venue open to anyone involved professionally in disease management. The goal is open sharing of information about what disease management programs are being implemented, what is working, and what is not.)
  To join, simply email your Name, Organization, Title, and Email Address to DiseaseMgt-request@managedcaremag.com
  Or join online at http://www.managedcaremag.com/list.html

• Disinissues ( A discussion list designed to exchange of information and advice about the process of applying for, appealing, and renewing disability insurance from private long-term disability insurers and the U.S. Social Security Administration.)
  To subscribe, send a blank e-mail message

  To: Disinissues-subscribe@yahoogroups.com

  Associated Website: www.cfids-me.org/disinissues/

• Epilepsy-list (Discussions about Epilepsy and seizure disorders.)
  To subscribe, send the message with a blank subject line:
  

    subscribe epilepsy-list Firstname Lastname
  
  

  To: LISTSERV@CALVIN.DGBT.DOC.CA

• HOLISTIC-L (For health care professonals)
  Enter the word JOIN in the subject line and enter the following command within the message area:
  

    JOIN HOLISTIC-L
  
  

  To: LISTSERV@CITADEL.NET.

• HEALTH-BRIDGE (HEALTH-BRIDGE is an unmoderated discussion list to foster more active partnerships between health-oriented self-help online resources creators and health care professionals such as physicians, nurses, health researchers, medical librarians, social workers or representatives of Health Maintenance Organizations. Contact Gilles Frydman gilles@dorsai.org)
  To join, send the message:
  

    SUB HEALTH-BRIDGE your name
  
  

  To: LISTSERV@ACOR.ORG

• HealthE (Discussion list. Format: Friendly, warm relaxed atmosphere. Substantive posts are encouraged. List traffic: 20+ messages a day. Digest version is available. Discussion mailing list info HealthE-request@home.ease.lsoft.com)
  To join, send the message:
  

    Subscribe HealthE Your Name
  
  

  To: LISTSERV@HOME.EASE.LSOFT.COM

• HLTH-LAW-L (Health Law Forum; digest. APHA) To subscribe, send the message
  

    subscribe hlth-law-l digest
  
  

  To: hlth-law-l@liststar.apha.org

• HLTH-REFORM-L (Health Reform Issues; digest. APHA) To subscribe, send the message
  

    subscribe hlth-reform-l digest
  
  

  To: hlth-reform-l@liststar.apha.org

• IBDLIST (Moderated mailing list for discussions of inflammatory bowel diseases, with emphasis on Crohn's Disease and ulcerative colitis.)
  To subscribe, send a request to ibdlist-request@menno.com.

• Infect-L (Infectious Disease Issues; digest. APHA) To subscribe, send the message
  

    subscribe infect-l digest
  
  

  To: infect-l@liststar.apha.org

• Post-Polio-Med (An open forum for questions and answers to and from post-polio syndrome researchers, physicians and other post-polio syndrome medical professionals, polio survivors, family, friends, students and others who are interested in post-polio syndrome. To subscribe, send the message:

   SUBSCRIBE POST-POLIO-MED yourfirstname yourlastname

  To: listserv@listserv.icors.org

  Associated Web site: www.skally.net/ppmed/

• PUB-HLTHED-L (Public Health Education and Health Promotion; digest. APHA) To subscribe, send the message
  

    subscribe pub-hlthed-l digest
  
  

  To: pub-hlthed-l@liststar.apha.org

• Workers-Comp (a workers-comp mailing list. To subscribe, send the message
  

    SUBSCRIBE
  
  

  To: workers-comp@groupserver.revnet.com

  To subscribe to the digest format, send the message
  

    SUBSCRIBE
  
  

  To: wc-digest@groupserver.revnet.com

Online Bulletin Boards and Chat Rooms

Fibromyalgia

Immunesupport.Com Chats and message boards.

MedSupport Web Forums - Fibromyalgia Forum

Sapient Heath Network Chat forums.

Sapient Heath Network Message Boards.

Sapient Heath Network Men to Men, a board for men to share their experiences with FMS/CFIDS.

Co-Cure Issue Boards

Multiple Chemical Sensitivity

Co-Cure Issue Boards

Immune Disorders

Co-Cure Issue Boards

Gulf War Syndrome

Co-Cure Issue Boards

Chronic Fatigue Syndrome

Immunesupport.Com Chats and message boards.

WebMD Chat forums.

WebMD Message Boards.

WebMD Men to Men, a board for men to share their experiences with FMS/CFIDS.

The Leaning Tree Chat Room. Please note that this is a java enabled chat and you will need a java enabled browser to use.

Co-Cure Issue Boards

Other

Ability OnLine Support Network is an electronic mail system that connects young people with disabilities or chronic illness to disabled and non-disabled peers and mentors.

allHealth.Com is a valuable internet resource for a number of medical problems, including pain management.

AlzheimerSupport.com Chat room and message boards.

ArthritisSupport.com Chat room and message boards.

MedSupport Web Forums - Alternative Medicine

MedSupport Web Forums - Celiac Disease

MedSupport Web Forums - Chronic Pain/Pain Management

MedSupport Web Forums - Caregiver's Support

Co-Cure Issue Boards