From: Donna Dean, PhD <DeanD1@od.nih.gov> as posted today to the
list CMMFDC-L The Name Change Workgroup (NCW) has received considerable input in
response to its draft Name Change Proposal and the information is being
reviewed by the NCW members. Rather than respond to individual inquiries or
requests for clarification, the NCW will provide a more comprehensive
response to all the inquires following the proposal questionnaire deadline of
January 7th. Even after this date, we look forward to continuing the dialogue
with individuals and various constituent groups about their respective points
of view. We will begin to develop a response in January which will address
and clarify the many excellent points raised. The NCW was created to investigate the broad name issues, communicate with
various stakeholders, review existing literature, and develop
recommendations. Considering this general mandate, we believe the draft
recommendations are within the purview of the NCW. Our recommendations
encompass an umbrella term, which we call Chronic Neuroendocrineimmune
Dysfunction Syndrome (CNDS) and the concept of subgroups that exist under
this term. It is important to point out that The Name Change Workgroup is purely an
advisory committee, empowered to make recommendations, not to enact those
recommendations. Any such recommendation remains a potential possibility
until the CFS Coordinating Committee (CFSCC) and the Department of Heath and
Human Services decide how to respond to what the NCW officially presents. The
CFSCC is an advisory committee which provides recommendations to the
Secretary of the Department of Health and Human Services. The Department of
Health and Human Services is empowered to enact such recommendations. |